April 14, 2024

Hi! My name is Jordyn, and you may have seen me on Mighty Well’s social channels (here I am when I had a PICC Line.)  I’m 21 and suffer from POTs, Ehlers-Danlos Syndrome, gastroparesis, hypoglycemia, and MCAS. I document my medical journey on Social Media Via TikTok, Instagram, and YouTube! Read on to learn more about using an IV infusion backpack.

Ditching the IV pole

I currently use Mighty Well’s Fluid Motion Backpack, which has given me so much freedom. I am usually hooked up for my IV infusion between 8 to 12 hours daily through my Hickman line. A Hickman line is a central line catheter similar to a PICC line but placed on your chest. Having to stay connected to an IV pole all day is exhausting. However, when I use this bag, I can go about my day normally. 

Organized and accessible

The Fluid Motion Backpack has so much storage, so it’s very easy to keep everything clean and organized. I store many supplies and personal items in my bag, such as a medical folder for emergency information in case an accident arises, extra giving sets, dressings, blood pressure cuffs, and even my iPad! Being able to find something in a pinch is very helpful.

My favorite compartment

The larger back medical compartment is my personal favorite. I can have my infusion pump on one side nice and secure, thanks to the velcro flaps! On the other side, I have saline flushes and heparin. About a handful of these items will fit in the larger needle-safe pocket, which is awesome because sometimes, you’ll need extra supplies in a pinch! 

In the two smaller mesh pockets at the top, I store emergency information cards (which I made on Canva, they are so cute!), an emergency glucose kit, extra alcohol swabs, disinfecting caps for the ends of my Hickman line, and Liquid IV! If you’ve been thinking about getting a Fluid Motion Backpack, I highly recommend it! 

If you’d love to see more about how I use my IV infusion backpack and other days in the life of chronic illness, check out my YouTube channel. Additionally, If you’re interested in purchasing your own, you can use my code JORDYN10 at checkout for 10% off! My bag is customized by Rescuing Me Boutique.

The post How I Pack My IV Infusion Backpack appeared first on Mighty Well Journal.

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